From JD Faccinetti, co-founder and chief editor – I like to ramble, so here it goes. I was musing about how unique and essential this little gland is—the size of a pea, the pituitary runs almost
Patients’ Corner
News and information for patients.
The Pituitary Society reacts to the controversial reclassification of pituitary adenomas to neuroendocrine tumors
From J D Faccinetti, chief editor co-founder – First, some background: the latest edition of the WHO (World Health Organization) Endocrine Tumors and Central Nervous System Tumors group reclassified pituitary adenomas as neuroendocrine tumors or
Aging and hormones
A recent article in Oxford Academic Press reviews the state of research and development of age-related hormonal changes, focusing on understanding the factors that cause those changes with the goal of improving health. Future activities in this area, guided by this scientific statement, will be particularly relevant to those 65 years and older.
Online behavior: another concerning look
In a recent JAMA Network article covering the COVID-19 pandemic, 23.3% of physicians reported personal attacks on social media. Online bullying and social media harassment are nothing new, but this behavior, plus considerable misinformation, makes disseminating helpful, accurate content an ongoing challenge.
Oxytocin deficiency in people with AVP-Deficiency (central diabetes insipidus) a key to potential new therapeutic approaches.
Cihan Atila, M.D., principal investigator Department of Endocrinology, Diabetology and Clinical Research, University Hospital Basel, University of Basel, Basel, Switzerland, reports that now, for the first time, researchers from the University of Basel and the University
Scanning past articles and podcasts
From the editor’s desk – One of the challenges for us at PWN is keeping content from years past easy to find and available to our readers.
Orphan Drugs: a lifeline for rare diseases
The World Orphan Drug Congress slated for May 23 to 25 in Washington DC, brings together leading pharmaceutical and biotech companies, government and regulatory authorities, patient advocacy groups, payers, investors, and solution providers to meet and
A guide for people with AVP-D (DI) facing surgery
From the “Got Diabetes Insipidus” support group comes this very helpful guide from Drs. Christ-Crain and Atila – University Hospital Basel – to help in the management of AVP-D (arginine vasopressin deficiency, formerly diabetes insipidus)
Live-talk, session 22 – Dr. Sylvia Asa discusses her groundbreaking work in endocrine pathology
This week’s Live-talk offers critical knowledge that people affected with pituitary and endocrine diseases need to know to ensure they receive proper treatment. Dr. Sylvia Asa, a pioneer in endocrine and pituitary tumor pathology, talks with Dr. Lewis Blevins about her work in the field and the reclassification of pituitary adenomas to Pituitary Neuroendocrine Tumors, or PitNets.
Conference presentations acromegaly Canada 2022
The Acromegaly Canada International acromegaly conference was held in Vancouver in late 2022 and served timely presentations and discussions with the latest updates and news. If you have acromegaly, have a family member that suffers
Access to medications: challenges and opportunities
Pituitary World News has undertaken an initiative to understand and share the complicated issues related to medication access so patients can join us in advocating for a better system. Don’t miss this engaging podcast.
Patient and advocacy groups observe pituitary awareness month
From the editors: In what is now a yearly occurrence, pituitary groups and industry from all over the world mark October as pituitary awareness month. “The hope in doing this work is to organize a joint effort to maximize the opportunity to talk with a unified voice and increase awareness of pituitary diseases,” said JD Faccinetti, Chairman and chief editor of Pituitary World News.
Amplifying great work: Great patient participation reported in Diabetes Insipidus Survey
Last year, Got Diabetes Insipidus group director Pat Gildroy was asked to be the patient representative for the development and distribution of the DImond Patient Survey. Pat reached out to PWN for help in generating responses