A discussion about purpose

In October 2014 Dr. Lewis Blevins, Medical Director of the California Center for Pituitary Disorders and Professor of Clinical Medicine and Clinical Neurological Surgery at the University of California San Francisco, and I founded Pituitary World News. We are often asked why. Here’s the story and how you can get involved.

As we progressed we watched our community grow, we learned about the types of articles and stories that helped, we watched as our podcasts were heard and articles shared, and we became smarter about how to more effectively reach our objectives. And every day we become more encouraged do to what it takes to reach more people, both patients and health professionals, to put pituitary disease on the radar.

We recently produced an informational flyer: “Why PWN“, that explains why we took up this effort. It lays out our rationale and our plans for the future. It also helped us understand the scope of the problem, which we detail in an infographic “The numbers Behind the Problem, that you can read and download from our website.

We think it is important for us to share this information to encourage you to be a part of this movement to change how we spread information. There are many ways in which you can help. You can encourage people to visit the site; that includes your friends, family, co-workers, doctors, dentist, pharmacists, and other healthcare professionals. In addition, you can share our articles and share your story. You’d be surprised how much we all learn by reading about the experiences of those with similar challenges. Pituitary disease does not discriminate. It’s silent.  Awareness is critical to reducing the number of years it takes for a proper diagnosis and we can all play a part in this effort.

To learn more about how you can get involved and contribute visit our “Support PWN” page or click on the button below.

Also, if you want to learn more about our strategies and rationales on how Pituitary World News can help reduce the time it gets to diagnose pituitary patients, read about the PWN Logic Model here.

 

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Thank you!

© 2016 – 2017, Pituitary World News. All rights reserved.

1 COMMENT

  1. Thank you for bringing awareness and information on Pituitary disease to the forefront, especially for the thousands of undiagnosed patients who still need help.

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