From J D Faccinetti, cofounder – Sharing experiences can provide tremendous support to others dealing with similar issues. The simple fact of knowing you are not alone is very helpful and reassuring. Every so often
From Dr. Barton Goldsmith PH.D. – Staying on course can be a challenge when life throws a sucker punch at you. Here are some tools to help you get to where you want to go
From Lewis S Blevins, Jr. MD – I see a lot of men who are concerned about taking testosterone replacement for hypogonadism due to pituitary disease. Their concerns are primarily related to whether exogenous testosterone
This is a fascinating talk between three acromegaly patients. Their frank discussion gives a poignant look into the world of living with a chronic condition. The “Straight Talk Acromegaly” live panel discussion recently broadcasted by
A recent video from Co-Founders of Pituitary World News, Jorge Faccinetti and Dr. Lewis Blevins highlights their successful doctor patient relationship and how that led to the founding of this innovative newsmagazine. PWN's mission is to
In this podcast Dr Blevins discussed the drugs used to treat Acromegaly. Among other things, he discusses his perspectives for the proper selection of different drugs. Read more about Acromegaly and review the articles and
From Jorge D Faccinetti – cofounder – Once again this past weekend I had the privilege of presenting the patient perspective and experiences to a group of physicians including endocrinologists, primary care docs, and other
And to mark the occasion we thought it would be fun to participate in the “A Day in my Acromegaly Shoes” initiative. This is a fun program sponsored by Novartis, designed to increase awareness of Acromegaly.
The Global Genes Rare patient advocacy Summit was held last month in Southern California. The conference was packed with presentations and events that give patients, caregivers, and advocates the tools they need to be better informed and
Being Rare From Dan Jeffries, writer, author – “It might sound a little perverse, but I feel almost lucky to have experienced two rare medical conditions in my life. The first was Wyburn-Mason syndrome, a
Don’t miss Radio personality, acromegaly patient, and co-host of the popular Miami Elvis Duran and the Morning Show, Froggy’s live panel discussion for acromegaly patients and caregivers. The program will take place on Froggy’s Facebook page, on October
In today’s podcast Dr. Lewis Blevins reviews and summarizes information on the usage of Somatostatin Analogues in the treatment and management of acromegaly.