Podcast: Critical COVID-19 information for pituitary patients

We caught up with Dr. Kevin Yuen, medical director of the Barrow Pituitary Center and the Barrow Neuroendocrinology Clinic in Phoenix, Arizona, and  Dr. Lewis...

Survey: What is it like to live with Acromegaly?

Your insights matter. From J D Faccinetti – co-founder and chief editor - In the awareness business coming up with new, fresh, creative ideas is essential...

6. The clinical trial process in new drug development

Dr. Alan Krasner, Chief Medical Officer, and Dr. Chris Cook, Medical Director, Endocrinology at Crinetics Pharmaceuticals offer an in-depth look at clinical studies.  In...

Real life stories told by people living with Acromegaly

A few weeks ago, Dan Jeffreys, a UK based author, musician, and patient advocate sent me a message to tell me about his latest...

April 28 FDA Meeting: an excellent opportunity for acromegaly patients to get involved

  On April 28, 2020, there is an FDA Externally Led Patient-Focused Drug Development meeting organized by the Acromegaly Community, a leading patient advocacy organization....

Canada 2019 International Conference Videos available for viewing

As we reported a few months back, the Canadian International Acromegaly conference offered exciting presentations and discussions.  If you have acromegaly, have a family...

3. Giving patients a place at the table

The third podcast in our series on drug development touches on the effort that industry is making to partner with patients to understand needs,...

1 – Exploration, Innovation and Creativity: An intimate look at new drug development...

This is the first in a series of 6 podcasts on the ins and outs of drug development.  In it, we discuss the journey that...

FDA meeting focuses on Acromegaly

We are thrilled to announce that Acromegaly will be the focus of a PFDD (Patient-Focused Drug Development) meeting sponsored by Acromegaly Community Inc., a...

PWN at Spain’s 2019 Endocrinology Society Congress

From the desk of Jorge D Faccinetti, co-founder - The Spanish Society of Endocrinology or SEEN (Sociedad Española de Endocrinologia y Nutricion) had their...

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