Real life stories told by people living with Acromegaly

A few weeks ago, Dan Jeffreys, a UK based author, musician, and patient advocate sent me a message to tell me about his latest...

April 28 FDA Meeting: an excellent opportunity for acromegaly patients to get involved

  On April 28, 2020, there is an FDA Externally Led Patient-Focused Drug Development meeting organized by the Acromegaly Community, a leading patient advocacy organization....

Canada 2019 International Conference Videos available for viewing

As we reported a few months back, the Canadian International Acromegaly conference offered exciting presentations and discussions.  If you have acromegaly, have a family...

3. Giving patients a place at the table

The third podcast in our series on drug development touches on the effort that industry is making to partner with patients to understand needs,...

1 – Exploration, Innovation and Creativity: An intimate look at new drug development...

This is the first in a series of 6 podcasts on the ins and outs of drug development.  In it, we discuss the journey that...

FDA meeting focuses on Acromegaly

We are thrilled to announce that Acromegaly will be the focus of a PFDD (Patient-Focused Drug Development) meeting sponsored by Acromegaly Community Inc., a...

PWN at Spain’s 2019 Endocrinology Society Congress

From the desk of Jorge D Faccinetti, co-founder - The Spanish Society of Endocrinology or SEEN (Sociedad Española de Endocrinologia y Nutricion) had their...

Risa’s story

From Jorge D Faccinetti, co-founder - Take the bull by the horns. This is an expression that most likely originated in the American West,...

A fun way to communicate patient experiences

The perception that scientists and healthcare professionals do not understand what patients go through when dealing with disease, particularly chronic disease, was the focus...

Patients and Doctors share insights

From the desk of Jorge D Faccinetti, cofounder - One word describes this conference: FUN!  The National and International Canadian conference this past September in...

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