A Conversation with Acromegaly Patient Advocates

We recently sat down with members of the acromegaly community to discuss their treatment journeys and the lessons they learned along the way, including...

Big news for acromegaly at Crinetics

From the desk of J D Faccinetti - co-founder - The company recently kicked off a phase 3 trial for their new nonpeptide oral...

Pregnancy and acromegaly

Acromegaly: what to do with medical treatment during pregnancy and the options available today.
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The ride for acromegaly

From Jorge D. Faccinetti - co-founder.  With a pituitary disease like acromegaly, Cushing's, hypopituitarism, and others, or for that matter, any other chronic condition,...

Two clinical trials for acromegaly patients: see if you are eligible.

Camurus AB, a pharmaceutical company based in Lund, Sweeden, is currently recruiting volunteers for two clinical trials on the long-term safety and efficacy of...

Ionis Rare Disease Webinar series on Acromegaly

If you missed this fantastic event, here is an on-demand video you can watch at your leisure. In this second installment of the Ionis'...

PFDD: an excellent opportunity for acromegaly patients to get involved

  On Thursday, January 21, 2021, there is a virtual FDA Externally Led Patient-Focused Drug Development (PFDD) meeting organized by the Acromegaly Community, a leading...

A talk with Crinetics Chairman Scott Struthers, Ph.D.

During these trying times, work continues, even at a faster pace, for new drugs and therapies for pituitary patients. From the J D Faccinetti, co-founder...

A discussion on telemedicine and pituitary disease

Important changes in telehealth visit regulations provide an excellent opportunity for patients to receive consultations from highly experienced specialists in pituitary disease. Read on! On...

On November 1 organizations around the world mark Acromegaly Day

Patients, advocacy, and healthcare organizations are promoting awareness of the condition around the world. The World Alliance of Pituitary Organizations WAPO Board decided to re-use the...

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