Stigma: “a mental or physical mark that is characteristic of a defect or disease”

An Opinion and commentary from JD Faccinetti, Chairman, and co-founder.  I’ve always been interested in stigma, particularly the stigma associated with pituitary disease, and...

Acromegaly Community 2019 National Conference: Save the date!

Leading patient support group Acromegaly Community announced they will hold their national patient conference in conjunction with The Pituitary Society Sixteenth International Pituitary Congress March 20-22,...

New York Times story underlines pituitary patients’ struggles with delayed diagnosis.

A recent New York Times Sunday Magazine article by Lisa Sanders M.D. featured PWN cofounder Lewis Blevins, M.D. and the experiences of one of...

Insurance issues and clinical trials

From Jill Sisco, patient advocate, president of the acromegaly community and PWN contributor comes this commentary on insurance out-of-pocket charges and an update on...

Acromegaly that is difficult to determine

Listen to a discussion of Acromegaly cases that, for a variety of clinical and biochemical reasons, are difficult to discern.  Learn about people with...

Acromegaly portraits: A photo essay by Spain’s acromegaly community

In a fantastic photo exposition from our friends at the Spanish Acromegaly Association, Raquel Ciriza, and her team illustrate this point with stunning, beautiful visuals...

Arthritis and acromegaly

Arthropathy is one of the most insidious conditions that can affect people with acromegaly often with challenging quality of life issues.   Bone and joint...

Podcast: Dan’s journey

I was fortunate to cross paths with Dan Jeffries a few weeks ago and chat with him about his journey with Acromegaly and a...

PODCAST: Sleep apnea and acromegaly

Studies suggest that sleep apnea is a very common and potentially dangerous condition for people with acromegaly if not properly treated.  Today's podcast presents an engaging...

HealthWell Foundation Launches New Fund to Provide Financial Assistance to Medicare Patients Living with...

The HealthWell Foundation®, an independent non-profit that provides a financial lifeline for inadequately insured Americans, announced recently it has launched a new fund to...

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