With the lead line of “There is more to my acromegaly than just numbers on a page” comes a new informational website from the Chiesi Global Rare Diseases patient support group. Rethink Acromegaly is a
Acromegaly
Acromegaly is usually caused by a noncancerous tumor. Middle-aged adults are most commonly affected. Symptoms include enlargement of the face, hands, and feet. Prompt treatment is needed to avoid serious illness. Drugs can reduce the effects of growth hormone. If needed, surgery and radiation may be used to remove tumor cells.
Drugs used in the medical treatment of Acromegaly
November 2, 2016
In this podcast Dr Blevins discussed the drugs used to treat Acromegaly. Among other things, he discusses his perspectives for the proper selection of different drugs. Read more about Acromegaly and review the articles and
Acromegaly awareness day is November 1
October 24, 2016
And to mark the occasion we thought it would be fun to participate in the “A Day in my Acromegaly Shoes” initiative. This is a fun program sponsored by Novartis, designed to increase awareness of Acromegaly.
Dan Jeffries: An insightful and hilarious patient memoir
October 17, 2016
Being Rare From Dan Jeffries, writer, author – “It might sound a little perverse, but I feel almost lucky to have experienced two rare medical conditions in my life. The first was Wyburn-Mason syndrome, a
Don’t miss it! Straight Talk Acromegaly Facebook Live Panel Discussion – October 26, 2016, 7:00pm EST
October 17, 2016
Don’t miss Radio personality, acromegaly patient, and co-host of the popular Miami Elvis Duran and the Morning Show, Froggy’s live panel discussion for acromegaly patients and caregivers. The program will take place on Froggy’s Facebook page, on October
Somatostatin Analogues in Acromegaly
October 14, 2016
In today’s podcast Dr. Lewis Blevins reviews and summarizes information on the usage of Somatostatin Analogues in the treatment and management of acromegaly.
From the BBC World Service a segment on acromegaly: and a PWN request for your diagnosis story
October 10, 2016
From J D Faccinetti, cofounder – Last week the BBC World Service radio network broadcasted a story about an acromegaly patients’ diagnosis experience. I found it fascinating first because it is not every day we hear a
Acromegaly 101: patient perspective
September 13, 2016
From the Pacific Neuroscience Institute, Sharmyn McGraw sends us this article in which she asked leaders of various pituitary organizations, including Pituitary World News, their opinions on the biggest obstacles facing acromegaly patients. From Sharmyn McGraw: As a
Dr. Blevins discusses the drug Pasireotide
September 6, 2016
In this podcast, Dr. Blevins gives us an overview of the drug Pasireotide for Cushing’s. Photo by: JD Faccinetti (close up at the California Redwoods forest) Music by: Bad at Math
We want Congress to know more about Acromegaly: Join our effort!
September 1, 2016
An effort is under way to enable Acromegaly patients and doctors to make congress more aware of the needs of patients suffering from this disease. More details on this effort will be forthcoming soon. One
Making a difference
July 28, 2016
Today we begin a new series of feature articles that highlight the tireless work that people do to help others. Here are three amazing human beings: Jill Sisco runs the Acromegaly Community website and
Know your IGF-I
March 5, 2016
Today we are starting a campaign to make sure all our readers diagnosed and living with acromegaly know their IGF-I levels. Make sure you ask your physician to tell you and please check your levels
Acromegaly (part 3), medical treatment
March 2, 2016
In this podcast, Dr. Lewis Blevins discusses the medical management of acromegaly with the drug “pegvisomant for injection” or Somavert. This is our third podcast in a series of six on acromegaly and its management.