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For patient support groups and advocates to share their stories, best practices, collaborate and get involved.

Can oversharing information be the best medicine?

Jay Libove, a privacy and security expert, and pituitary patient discusses privacy and sharing information on social media In today’s new age of digital medicine...

From The Netherlands, AdrenalNET: a comprehensive website for Adrenal disorders

If you suffer from an adrenal disease or would like to learn more about it, AdrenalNET offers comprehensive, reliable, easy to access scientific and...

How Can I Find a Mental Health Professional Who Knows About Pituitary Disorders?

From Linda M. Rio, M.A. - I woke this morning to find an email to me from a parent pleading for my help. This...

Another year at the UC Berkeley-UCSF joint medical program.

There are many things about the work I do for Pituitary World News that are very rewarding and truly enjoyable. Meeting young, bright medical...

The voice of the patient in action.

Pituitary Word News co-founders Dr. Lewis Blevins and J D Faccinetti gave a talk on acromegaly at the recent American Association of...

Patient Perspectives on the Impact of Rare Diseases: Bridging the Commonalities

The Food and Drug Administration (FDA) is hosting a public meeting and an opportunity for public comment on “Patient Perspectives on the...

Misinformation and Bias: Additional Perspectives

From the desk of contributor Linda M. Rio, M.A. Marriage and Family Therapist - Pituitary World News editor, J D Faccinetti, recently published an article...

The susceptibility of social media groups to believe and advocate for false, erroneous, and...

From PWN Co-founder J D Faccinetti - In a recent paper from the National Academies of Science of the United States of America,  “The...

Pituitary patients weigh in on telemedicine’s pros and cons

Today we discuss the findings of the recently conducted patient survey on telemedicine.  The survey shed some light on critical patient perspectives and perceptions,...

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