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For patient support groups and advocates to share their stories, best practices, collaborate and get involved.

More from Spain: Acromegalia conference packed with valuable information.

Madrid, Spain: J D Faccinetti reporting.   The Spanish Association of People affected by Acromegaly has a full schedule for this week's conference in Madrid packed with...

A big thank you!

From the desk of JD Faccinetti co-founder - On behalf of Dr. Lewis Blevins and myself, a big thank you to Engage Health for recognizing Pituitary...

Briefings for August 2018

Interesting information and news for people living and dealing with pituitary conditions.   Leptin: According to experts increasing Leptin sensitivity may help in weight loss. There is still much...

Acromegaly Community 2019 National Conference: Save the date!

Leading patient support group Acromegaly Community announced they will hold their national patient conference in conjunction with The Pituitary Society Sixteenth International Pituitary Congress March 20-22,...
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Gene Therapy: some answers

There is quite a bit of noise out there about Gene Therapy.  What it is, how it works, what can it actually do?  ...

Insurance issues and clinical trials

From Jill Sisco, patient advocate, president of the acromegaly community and PWN contributor comes this commentary on insurance out-of-pocket charges and an update on...

NORD issues statement regarding insurance copays

Today the National Organization for Rare Disorders - NORD - issued a statement and provided a very useful explanation regarding the increasing use of copay...

Substandard drugs: In what world is this remotely acceptable?

  Español From the desk of Jorge D Faccinetti Cofounder and Chairman, Pituitary World News -  I recently learned that substandard drugs for acromegaly and...

PWN and WAPO in push to increase awareness of pituitary disease around the world

From JD Faccinetti, Co-founder, Chairman, and CEO - This year we participated in the World Alliance of Pituitary Organizations – WAPO 2018 – conference held recently...

World Alliance of Pituitary Organizations: April 2018 Newsletter

The World Alliance of Pituitary Organizations (WAPO) recently published their first newsletter for 2018 with a bunch of interesting pituitary organization's articles from around...

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