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For patient support groups and advocates to share their stories, best practices, collaborate and get involved.

The dangers and challenges of misinformation

From the desk of J D Faccinetti, co-founder, an op-ed - The whole thing about misinformation is that it is dangerous. More specifically, people can...

Big news for acromegaly at Crinetics

From the desk of J D Faccinetti - co-founder - The company recently kicked off a phase 3 trial for their new nonpeptide oral...

It’s time to fix this mess, but first we have to understand it.

From J D Faccinetti - cofounder: Pituitary World News has undertaken an initiative to understand and share the complicated issues related to access to...

Ionis Rare Disease Webinar series on Acromegaly

If you missed this fantastic event, here is an on-demand video you can watch at your leisure. In this second installment of the Ionis'...

 Advocating Big and Advocating Small…It’s all Important!

From Linda M. Rio, MA, Marriage & Family Therapist - A patient who attended the recent PWN/UCSF Virtual Patient Gathering - presentation videos are available...

A view of pituitary disease across the globe

From the desk of J D Faccinetti, co-founder - The World Alliance of Pituitary Organizations, WAPO is attempting to provide a world view of...

A muse for Rare Disease Day

From Jorge D Faccinetti, co-founder - Today is Rare Disease day. It is encouraging and gratifying to see the many organizations that participate by...

The Road to MYCAPSSA: A Conversation with Dr. Bill Ludlam

We recently had a chance to sit down with Chiasma Inc.’s Senior VP of Clinical Development & Medical Affairs, Dr. Bill Ludlam, to discuss...

Telemedicine and COVID-19, insights from our survey

Not surprisingly, COVID-19 appears to have significantly impacted pituitary patients' access to healthcare.  Our brief survey elicited information from respondents on their experiences and...

The unrecognized caveats of pituitary conditions

From Lewis S Blevins, Jr., M.D. - Today on Dr. Blevins' Corner: An elderly man underwent removal of the thyroid gland many years ago due...

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