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Advocacy Zone

For patient support groups and advocates to share their stories, best practices, collaborate and get involved.

 Advocating Big and Advocating Small…It’s all Important!

From Linda M. Rio, MA, Marriage & Family Therapist - A patient who attended the recent PWN/UCSF Virtual Patient Gathering - presentation videos are available...

A view of pituitary disease across the globe

From the desk of J D Faccinetti, co-founder - The World Alliance of Pituitary Organizations, WAPO is attempting to provide a world view of...

A muse for Rare Disease Day

From Jorge D Faccinetti, co-founder - Today is Rare Disease day. It is encouraging and gratifying to see the many organizations that participate by...

The Road to MYCAPSSA: A Conversation with Dr. Bill Ludlam

We recently had a chance to sit down with Chiasma Inc.’s Senior VP of Clinical Development & Medical Affairs, Dr. Bill Ludlam, to discuss...

Telemedicine and COVID-19, insights from our survey

Not surprisingly, COVID-19 appears to have significantly impacted pituitary patients' access to healthcare.  Our brief survey elicited information from respondents on their experiences and...

The unrecognized caveats of pituitary conditions

From Lewis S Blevins, Jr., M.D. - Today on Dr. Blevins' Corner: An elderly man underwent removal of the thyroid gland many years ago due...

Should we answer surveys, share our experiences, participate in drug trials, engage with others?

From J D Faccinetti co-founder - Unwanted surveys, polls, unsolicited robocalls, panels, emails, and text messages seem to be the order of the day,...

A talk with Crinetics Chairman Scott Struthers, Ph.D.

During these trying times, work continues, even at a faster pace, for new drugs and therapies for pituitary patients. From the J D Faccinetti, co-founder...

A discussion on telemedicine and pituitary disease

Important changes in telehealth visit regulations provide an excellent opportunity for patients to receive consultations from highly experienced specialists in pituitary disease. Read on! On...

The effects of COVID-19 on pituitary patients’ usage and access to healthcare

From J D Faccinetti and Lewis S Blevins, M.D. cofounders - Our focus today is on the effects of COVID-19 on pituitary patients' access...

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