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For patient support groups and advocates to share their stories, best practices, collaborate and get involved.

Commentary: Rogue Doctors and Boundaries

A commentary by J D Faccinetti cofounder- In this day and age of hyper communications, internet speed, ultra-connected populations, and copious amounts of easily...

PWN participates in the Spanish Association for People with Acromegaly conference

From the desk of J D Faccinetti, co-founder - Many new wonderful friends, new perspectives and a ton of energy dedicated to increase awareness...

More from Spain: Acromegalia conference packed with valuable information.

Madrid, Spain: J D Faccinetti reporting.   The Spanish Association of People affected by Acromegaly has a full schedule for this week's conference in Madrid packed with...

A big thank you!

From the desk of JD Faccinetti co-founder - On behalf of Dr. Lewis Blevins and myself, a big thank you to Engage Health for recognizing Pituitary...

Briefings for August 2018

Interesting information and news for people living and dealing with pituitary conditions.   Leptin: According to experts increasing Leptin sensitivity may help in weight loss. There is still much...

Acromegaly Community 2019 National Conference: Save the date!

Leading patient support group Acromegaly Community announced they will hold their national patient conference in conjunction with The Pituitary Society Sixteenth International Pituitary Congress March 20-22,...
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Gene Therapy: some answers

There is quite a bit of noise out there about Gene Therapy.  What it is, how it works, what can it actually do?  ...

Insurance issues and clinical trials

From Jill Sisco, patient advocate, president of the acromegaly community and PWN contributor comes this commentary on insurance out-of-pocket charges and an update on...

NORD issues statement regarding insurance copays

Today the National Organization for Rare Disorders - NORD - issued a statement and provided a very useful explanation regarding the increasing use of copay...

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