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For patient support groups and advocates to share their stories, best practices, collaborate and get involved.

Acromegaly Community 2019 National Conference: Save the date!

Leading patient support group Acromegaly Community announced they will hold their national patient conference in conjunction with The Pituitary Society Sixteenth International Pituitary Congress March 20-22,...
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Gene Therapy: some answers

There is quite a bit of noise out there about Gene Therapy.  What it is, how it works, what can it actually do?  ...

Insurance issues and clinical trials

From Jill Sisco, patient advocate, president of the acromegaly community and PWN contributor comes this commentary on insurance out-of-pocket charges and an update on...

NORD issues statement regarding insurance copays

Today the National Organization for Rare Disorders - NORD - issued a statement and provided a very useful explanation regarding the increasing use of copay...

Substandard drugs: In what world is this remotely acceptable?

  Español From the desk of Jorge D Faccinetti Cofounder and Chairman, Pituitary World News -  I recently learned that substandard drugs for acromegaly and...

PWN and WAPO in push to increase awareness of pituitary disease around the world

From JD Faccinetti, Co-founder, Chairman, and CEO - This year we participated in the World Alliance of Pituitary Organizations – WAPO 2018 – conference held recently...

World Alliance of Pituitary Organizations: April 2018 Newsletter

The World Alliance of Pituitary Organizations (WAPO) recently published their first newsletter for 2018 with a bunch of interesting pituitary organization's articles from around...

More on Opioids and Pain

In a recent podcast on acromegaly and arthritis, we discussed the opioid use crisis currently gripping the United States. The podcast focused primarily on arthropathy, articular,...

PWN technology corner: A look at Telehealth

The Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services defines telehealth as the "use of electronic information...

Future Doctors – 2018

From J D Faccinetti - Cofounder.  This is a group of first-year medical students from the  UC Berkeley-UCSF Joint Medical Program (JMP).  I had...

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