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Advocacy Zone

For patient support groups and advocates to share their stories, best practices, collaborate and get involved.

October is Pituitary Awareness Month.

From the editor's desk - For organizations in the pituitary space, we believe it is critically important to reach out to a broader audience...

From the PWN founders

    Photo by Towfiqu barbhuiya 

Canada to Mexico: Rare pituitary disease patient bikes the 1845-mile Pacific Coast Highway

My conversation with Risa Heidt, who will be riding her bike from Canada to Mexico to promote awareness of rare pituitary diseases: Marisa "Risa"...

A look at the Orphan Drug Congress

Back In-Person! The Orphan Drug Congress, slated for this August 25 to 27 at the Gaylord National Resort & Convention Center, Oxon Hill, Maryland USA,...

The dangers and challenges of misinformation

From the desk of J D Faccinetti, co-founder, an op-ed - The whole thing about misinformation is that it is dangerous. More specifically, people can...

Big news for acromegaly at Crinetics

From the desk of J D Faccinetti - co-founder - The company recently kicked off a phase 3 trial for their new nonpeptide oral...

It’s time to fix this mess, but first we have to understand it.

From J D Faccinetti - cofounder: Pituitary World News has undertaken an initiative to understand and share the complicated issues related to access to...

Ionis Rare Disease Webinar series on Acromegaly

If you missed this fantastic event, here is an on-demand video you can watch at your leisure. In this second installment of the Ionis'...

 Advocating Big and Advocating Small…It’s all Important!

From Linda M. Rio, MA, Marriage & Family Therapist - A patient who attended the recent PWN/UCSF Virtual Patient Gathering - presentation videos are available...

A view of pituitary disease across the globe

From the desk of J D Faccinetti, co-founder - The World Alliance of Pituitary Organizations, WAPO is attempting to provide a world view of...

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