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Advocacy Zone

For patient support groups and advocates to share their stories, best practices, collaborate and get involved.

A look at the Orphan Drug Congress

Back In-Person! The Orphan Drug Congress, slated for this August 25 to 27 at the Gaylord National Resort & Convention Center, Oxon Hill, Maryland USA,...

The dangers and challenges of misinformation

From the desk of J D Faccinetti, co-founder, an op-ed - The whole thing about misinformation is that it is dangerous. More specifically, people can...

Big news for acromegaly at Crinetics

From the desk of J D Faccinetti - co-founder - The company recently kicked off a phase 3 trial for their new nonpeptide oral...

It’s time to fix this mess, but first we have to understand it.

From J D Faccinetti - cofounder: Pituitary World News has undertaken an initiative to understand and share the complicated issues related to access to...

 Advocating Big and Advocating Small…It’s all Important!

From Linda M. Rio, MA, Marriage & Family Therapist - A patient who attended the recent PWN/UCSF Virtual Patient Gathering - presentation videos are available...

The Road to MYCAPSSA: A Conversation with Dr. Bill Ludlam

We recently had a chance to sit down with Chiasma Inc.’s Senior VP of Clinical Development & Medical Affairs, Dr. Bill Ludlam, to discuss...

Telemedicine and COVID-19, insights from our survey

Not surprisingly, COVID-19 appears to have significantly impacted pituitary patients' access to healthcare.  Our brief survey elicited information from respondents on their experiences and...

A talk with Crinetics Chairman Scott Struthers, Ph.D.

During these trying times, work continues, even at a faster pace, for new drugs and therapies for pituitary patients. From the J D Faccinetti, co-founder...

A discussion on telemedicine and pituitary disease

Important changes in telehealth visit regulations provide an excellent opportunity for patients to receive consultations from highly experienced specialists in pituitary disease. Read on! On...

A note on the importance of awareness

Tell us what is like to live with acromegaly From J D Faccinetti – co-founder and chief editor:  In the awareness business, coming up with new,...

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