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News from round the world

News and best practices from members of the World Alliance of Pituitary Organizations – WAPO – and other interesting global developments.

World Alliance of Pituitary Organizations: December 2019 Newsletter

Read the WAPO (World Alliance of Pituitary Organizations) December 2019 newsletter with news and activities from pituitary patient organizations from around the world. Through WAPO,...

Focus South Africa

Today we take a quick look at the Pituitary Community South Africa and their efforts to inform and educate on pituitary disease.  This an organization...

Things to think about: Coming up on Pituitary World News

From J D Faccinetti - co-founder - One of the unforeseen consequences of this crisis is how it has affected our editorial decisions, that...
video

A picture is worth a thousand words. No translation needed!

From The French Acromegaly patient organization, Acromegales, pas seulement - This is an excellent awareness video from French acromegaly patient organization "Acromegales, pas Seulement" on the symptoms...

Canada 2019 International Conference Videos available for viewing

As we reported a few months back, the Canadian International Acromegaly conference offered exciting presentations and discussions.  If you have acromegaly, have a family...

Ecuador: Monthly meetings enhance doctor patient communication

From our friends in Ecuador,  Margarita Vasques Amoroso sends us information on their monthly meetings. Specialist and patients gather periodically to chat, exchange experiences and...

Podcast: Critical COVID-19 information for pituitary patients

We caught up with Dr. Kevin Yuen, medical director of the Barrow Pituitary Center and the Barrow Neuroendocrinology Clinic in Phoenix, Arizona, and  Dr. Lewis...

From The Netherlands, AdrenalNET: a comprehensive website for Adrenal disorders

If you suffer from an adrenal disease or would like to learn more about it, AdrenalNET offers comprehensive, reliable, easy to access scientific and...

Substandard drugs: In what world is this remotely acceptable?

  Español From the desk of Jorge D Faccinetti Cofounder and Chairman, Pituitary World News -  I recently learned that substandard drugs for acromegaly and...

3. Giving patients a place at the table

The third podcast in our series on drug development touches on the effort that industry is making to partner with patients to understand needs,...

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