News from round the world

News and best practices from members of the World Alliance of Pituitary Organizations – WAPO – and other interesting global developments.

Exciting news for acromegaly and NET’s from Crinetics Pharmaceuticals!

In a press release today, San Diego, California based Crinetics Pharmaceuticals reports positive results from their Phase Two trial of PALTUSOTINE (the former CRN00808)....

News on Signifor, Signifor LAR, and newly approved Cushing’s drug ISTURISA

Recordati Rare Diseases, Inc., based in Lebanon, NJ, has recently acquired the rights to SIGNIFOR® LAR and the FDA approval for ISTURISA®(osilodrostat). Both products...

Are we over reacting? Some people think so.

This article caught my attention since so much of what we do today is based on big data. This coronavirus situation is no different....

Opinion: The Pandemic of Poor Communications

At the risk of adding to the Coronavirus news frenzy we're experiencing, I thought this piece from Gil Bashe, a health communication writer, deserved to...

Real life stories told by people living with Acromegaly

A few weeks ago, Dan Jeffreys, a UK based author, musician, and patient advocate sent me a message to tell me about his latest...

4. Podcast series “the journey to a new drug”: understanding molecules and receptors

This podcast, the fourth in our drug development series “the journey to a new drug,” brings you my conversation with Dr. Stephen Betz, cofounder...

Canada 2019 International Conference Videos available for viewing

As we reported a few months back, the Canadian International Acromegaly conference offered exciting presentations and discussions.  If you have acromegaly, have a family...

3. Giving patients a place at the table

The third podcast in our series on drug development touches on the effort that industry is making to partner with patients to understand needs,...

World Alliance of Pituitary Organizations: December 2019 Newsletter

Read the WAPO (World Alliance of Pituitary Organizations) December 2019 newsletter with news and activities from pituitary patient organizations from around the world. Through WAPO,...

PWN at Spain’s 2019 Endocrinology Society Congress

From the desk of Jorge D Faccinetti, co-founder - The Spanish Society of Endocrinology or SEEN (Sociedad Española de Endocrinologia y Nutricion) had their...

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