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Touching patient journeys from CSRF (Cushing’s Support & Research Foundation)

From the Desk of Leslie Edwin, President of CSRF and PWN Contributor - We have just completed an intimate, four-video series of first-hand accounts of...

FDA meeting focuses on Acromegaly

We are thrilled to announce that Acromegaly will be the focus of a PFDD (Patient-Focused Drug Development) meeting sponsored by Acromegaly Community Inc., a...

Risa’s story

From Jorge D Faccinetti, co-founder - Take the bull by the horns. This is an expression that most likely originated in the American West,...

The Importance of Peer and Family Support in Dealing with Chronic Illness

From the desk of Linda M. Rio, M.A., Marriage and Family Therapist  -The Holidays are upon us at last, which means an inundation of...

Educational resources from the Cushing’s Support and Research Foundation

The CSRF has published materials from their recent Patient Journey Summit,"Defining the New Normal” The topics for the conference, held October 4-6, 2019 at Emory...

A fun way to communicate patient experiences

The perception that scientists and healthcare professionals do not understand what patients go through when dealing with disease, particularly chronic disease, was the focus...

Patients and Doctors share insights

From the desk of Jorge D Faccinetti, cofounder - One word describes this conference: FUN!  The National and International Canadian conference this past September in...

Positive news for new Cushing’s drug

In a press release, Strongbridge Biopharma announced comprehensive positive results of their Phase 3 SONICS study of RECORLEVTM (levoketoconazole) for the potential treatment of...

Developing a new drug for acromegaly

As we reported earlier this year, the acromegaly new drug development world has seen very exciting activity. Several studies are in the pipeline for oral...

PODCAST: Why do adenomas recur?

Today's podcast is about silent Corticotropic adenomas and the recurrence rate of these tumors vs. all pituitary adenomas.  Dr. Blevins weighs into a recent...

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