Podcast: Coronavirus

From Jorge Faccinetti and Lewis Blevins, M.D. - In today's podcasts, I ask Dr. Lewis Blevins, PWN co-founder and Medical Director, California Center for Pituitary...

From our friends at the Pacific Neuroscience Institute: Cushing’s 101

This article on Cushing’s disease provides a concise, excellent overview of the optimal management and highlights of both surgical and medical advances. Click here...

April 28 FDA Meeting: an excellent opportunity for acromegaly patients to get involved

  On April 28, 2020, there is an FDA Externally Led Patient-Focused Drug Development meeting organized by the Acromegaly Community, a leading patient advocacy organization....

Canada 2019 International Conference Videos available for viewing

As we reported a few months back, the Canadian International Acromegaly conference offered exciting presentations and discussions.  If you have acromegaly, have a family...
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Touching patient journeys from CSRF (Cushing’s Support & Research Foundation)

From the Desk of Leslie Edwin, President of CSRF and PWN Contributor - We have just completed an intimate, four-video series of first-hand accounts of...

FDA meeting focuses on Acromegaly

We are thrilled to announce that Acromegaly will be the focus of a PFDD (Patient-Focused Drug Development) meeting sponsored by Acromegaly Community Inc., a...

Risa’s story

From Jorge D Faccinetti, co-founder - Take the bull by the horns. This is an expression that most likely originated in the American West,...

The Importance of Peer and Family Support in Dealing with Chronic Illness

From the desk of Linda M. Rio, M.A., Marriage and Family Therapist  -The Holidays are upon us at last, which means an inundation of...

Educational resources from the Cushing’s Support and Research Foundation

The CSRF has published materials from their recent Patient Journey Summit,"Defining the New Normal” The topics for the conference, held October 4-6, 2019 at Emory...

A fun way to communicate patient experiences

The perception that scientists and healthcare professionals do not understand what patients go through when dealing with disease, particularly chronic disease, was the focus...

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