From JD Faccinetti, co-founder and chief editor – I like to ramble, so here it goes. I was musing about how unique and essential this little gland is—the size of a pea, the pituitary runs almost
Patients’ Corner
News and information for patients.
What Do Patients and Their Families Really Need?
From Linda M. Rio, M.A., Marriage & Family Therapist and PWN contributor “I’ve come to the conclusion that the way we engage with social media is like fire. You can use it to keep yourself
HealthWell Foundation Launches New Fund to Provide Financial Assistance to Medicare Patients Living with Acromegaly
The HealthWell Foundation®, an independent non-profit that provides a financial lifeline for inadequately insured Americans, announced recently it has launched a new fund to provide copayment and premium assistance to Medicare patients living with acromegaly.
Sleep Apnea: nothing to snore about
PWN is developing a series of podcasts dedicated to sleep apnea, a very common related condition in people with active or controlled acromegaly. Stay tuned for an engaging series of doctor-patient podcasts where we’ll discuss
Headaches and Anxiety discussed at patient support meeting
From our friends at the Pacific Neuroscience Institute. If you were unable to attend this meeting, here’s a video of the recent Pituitary Patient Support Group meeting presentations. The two very interesting and relevant subjects
Book review: THE PATIENT WILL SEE YOU NOW, Eric J Topol M.D.
From J D Faccinetti – cofounder. It is fun to think about complicated subjects particularly when those subjects include technology, medicine, and the mobile internet. As you ponder about change and what it means, it’s
What do you do if faced with this scenario?
From the desk of J D Faccinetti, co-founder PWN – You’re sitting at an airport. Suddenly someone sits next to you. You look. Then look again. The features. The hands. “Yes, I think this person
With tragedy all around, a few suggestions for those more sensitive to stress
From Linda M. Rio, Marriage & Family Therapist: Hurricanes of biblical proportion, a mass shooting to defy all imagination, not to mention fires out West and the innumerable daily, “normal” deaths and destruction all amount
Early Fall Musings: The need to speak-up, question, ask for another opinion, read, investigate, educate ourselves.
From Linda M. Rio, Marriage & Family Therapist and PWN contributor – My husband and I just returned from driving over 3,000 miles to and from Arkansas. We live in Southern California. As a passenger
The Acromegaly Patient community gathers in Vancouver, BC for its first support group conference.
From J D Faccinetti – cofounder. In what is sure to be the first of many, Canada’s acromegaly community gathered in Vancouver for a two-day session filled with community, activity, and information. Patients, pituitary specialists,
Considering medical and psychological treatment of endocrine disorders
From Jorge D Faccinetti – cofounder – Recent work conducted in the UK by the Kings Fund Center for Mental Health and published in Medscape, underlines the importance of psychological therapies that aid in the long-term
Coping With the Ups and Downs of Pituitary Disorders: A Webinar
Pituitary World News friend and contributor Linda M. Rio, M.A., MFT presents this informational lecture to help people identify at least 3 mental health symptoms that are common to those diagnosed with a pituitary disorder. Participants
Interview Study. Interested in providing feedback? Read more…
A leading research company will be conducting interviews for a usability study with patients diagnosed with acromegaly, carcinoid, and intestinal peptide tumors. The study is interested in your opinion on a future treatment delivery device.