Today’s podcast is about our super athlete friend Risa August and her new book about her acromegaly experience, her life, and her 1,800 mile ride from Canada to Mexico.
Podcasts
Knowledge and information are critical tools to affect early diagnosis in pituitary disease. Join Dr. Lewis Blevins and Jorge D Faccinetti cofounders, as they navigate the wonders and complexities of pituitary conditions.
Live talk, session 16 – Awareness and knowledge
To continue our focus on pituitary awareness month, this session touches on various issues related to awareness and its importance as a critical factor in reducing the time to diagnosis.
Live talk, session 15 – A chat with preeminent pituitary neurosurgeon Dr. Sandeep Kunwar
If you didn’t have a chance to hear it live, here’s a podcast from the live talk session from last Thursday with special guest and PWN friend and contributor Pituitary neurosurgeon Dr. Sandeep Kunwar. He joined Dr. Lewis Blevins for a great discussion of the latest in pituitary surgery and disease management.
Live talk, session 14 – Hair and Hormones
An informative discussion on the effects of hormones on hair loss, a common occurrence for people dealing with pituitary conditions. In this LIve-talk session, Dr. Blevins discusses the facts and the myths.
Live talk, session 13 – On this live talk session: a path to better systems
On our Live-talk program today, a fascinating, nothing left on the table, discussion about a variety of topics that affect pituitary patients; from access to medication and therapies to problems with social media and misinformation to the complexities of diagnosis and refuting diagnosis to the role of the doctor and the patient to solve many of these challenges.
Diabetes Insipidus: a common condition for Histiocytosis and Pituitary conditions
Today’s podcast focuses on an opportunity to learn about a group of rare diseases that share a common condition with pituitary disease. Histiocytosis or histiocytic disorders are a group of rare diseases that occur when there is an overproduction of white blood cells known as histiocytes that can lead to organ damage and tumor formation. DI impacts almost 50% of Histiocytosis patients and 35% of pituitary patients.
Live talk, session 12 – August 4, 2022: Residual and recurring Cushing’s
It’s always fascinating to listen to two of the recognized experts and leading clinicians in Cushing’s disease discuss their experiences with the disease and patients. In this Live Talk session, Pituitary World New’s innovative program for education and awareness, Dr. Kevin Yuen and Dr. Lewis Blevins bring an intimate, revealing look at their approaches to Cushing’s disease and syndrome.
Advocacy and Cushing’s: a chat with the CSRF
I’m happy to welcome Leslie Edwin, president of Cushing’s Support and Research Foundation (CSRF), to our microphones. The CSRF is a leading Cushing’s disease and syndrome patient support organization.
Live talk, session 9 – June 23, 2022: medical decision making
Decisions made by doctors and their patients can be some of the most complicated, difficult decisions to make. This session focuses on the factors that influence medical decision-making, the impacts those decisions carry, and how the practical clinical aspects of these choices affect our everyday lives.
Live talk, session 8 – June 9, 2022: The semantics of pituitary conditions
Semantics, or by definition, the way we relate to different meanings of words or other symbols, are essential. The words we use to communicate and inform are critical. In our session today, we discuss the semantics of pituitary medicine and underline the importance of describing things accurately.
The world of endocrine nursing: a chat with Dr. Chris Yedinak
In this podcast, we dive into the world of endocrine nursing with Dr. Chris Yedinak from the Oregon Health and Science University. For the last five years, she has specialized in neuroendocrine testing and pre-and post-operative care of patients with neuroendocrine and pituitary diseases. Nurses play a critical role in the care of patients with pituitary disease and we are delighted to bring you this wonderful conversation.
A conversation with Amryt’s new president for the Americas, Sheila Frame
We caught up with Sheila a few weeks ago at the Acromegaly Community Conference near San Francisco. We had a captivating chat about Mycapssa (oral octreotide) and about Amryt’s start in Dublin, Ireland, just six years ago, its philosophy, brand, and plans.
Live talk, session 7 – May 26, 2022: Valuable insights from actual pituitary medicine practice
This session presents more musing based on the actual practice of pituitary medicine, including growth hormone, the recent Covid-19 surge, dexamethasone dose adjustments, an interesting empty sella case with an enlarged pituitary gland, gadolinium, and the connection between mold and pituitary tumors misinformation flying around on the internet, adrenal and pituitary Cushing’s, and a look at telemedicine changes that may not be that good for patients.