On drug and therapy developments for rare diseases

From the desk of Jorge D Faccinetti, Chairman and chief editor – On April 28, the leading orphan drug industry, government and regulatory authorities, patient advocacy groups, payers, investors, and solution providers will meet virtually at the World Orphan Drug Congress. The event provides a forum to brainstorm and dialogue on ways to advance orphan drug development and improve access to life-saving therapies.

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The orphan drug conference is the largest conference of its kind, with over 1,500 people from 50+ countries attending the online edition virtually on April 28. There is a physical World Orphan Drug Congress slated for August 2021 in Washington DC. 

Much of the progress in rare disease drug and therapy development, and very much relevant to the pituitary disease community, was made possible by the Orphan Drug Act, enacted by the US Congress in 1983. Before this legislation, the industry had little incentive to develop treatments for small patient populations because the drugs were expected to be unprofitable. 

Pituitary World News will be covering both conferences and bringing you the latest relevant developments.  Stay tuned for our coverage.  Click here for a related article.

 

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