Touching patient journeys from CSRF (Cushing’s Support & Research Foundation)

From the Desk of Leslie Edwin, President of CSRF and PWN Contributor – We have just completed an intimate, four-video series of first-hand accounts of the Cushing’s journey.  They can be found, along with recorded sessions from our recent patient education day, on our YouTube channel: https://www.youtube.com/channel/UCcsLBoNnTSVu4SRsIcxS5Jg.
In this particular video, Tony and Michelle Hout of Dawsonville, GA accurately summarize the position a lot of us find ourselves in after surgery – with a new set of difficult symptoms and little to no help, treatment, therapy, or sometimes even validation for the ones that affect our day-to-day lives the most.  It is imperative that all stakeholders in the Cushing’s space understand that nothing is ever the same, and for some of us it completely changes the trajectory of the life we thought we had before we found out we had Cushing’s.

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